When your child is diagnosed with type 1 diabetes: Experiences of parents who also have the condition

Melanie Burcham

While it is rare for both a parent and their child to have type 1 diabetes, paediatric diabetes teams may come across this situation. This article explores the experiences and opinions of four such parents following their child’s diagnosis, and how diabetes teams can meet the needs of these families. The themes discussed include the emotional impact of a child’s type 1 diagnosis on the parent, and how their experience and knowledge of the condition can benefit their child, as well as providing challenges resulting from the parent’s own trauma of living with diabetes. Strategies for supporting and educating families following a child’s diagnosis, which include acknowledging the personal experiences that a parent with type 1 diabetes can bring and discussing emotional health routinely, are explored.

Citation: Burcham M (2023)

When your child is diagnosed with type 1 diabetes: Experiences of parents who also have the condition. Journal of Diabetes Nursing 27: JDN288

Article points

1. When a parent with type 1 diabetes has a child diagnosed with the same condition, the paediatric diabetes team must consider how to meet the particular needs of that family.

2. The parent’s experience of type 1 diabetes may bring feelings of guilt and grief, and other emotional challenges, as well as potential benefits arising from their knowledge of the condition. Paediatric diabetes teams need to acknowledge the additional pressures that such parents face, identify their specific needs and evaluate how to support the family.

Key words

- Children with type 1 diabetes

- Diabetes distress

- Emotional support

- Parents with type 1 diabetes

Authors

Melanie Burcham, Paediatric Diabetes Clinical Nurse Specialist, Royal Free Hospital, London.

Improved Bates-Jensen score following negative pressure wound therapy on wounds of various aetiologies: an experience from a tertiary care centre

Aim: The objective of this study is to evaluate the safety and efficacy of a negative pressure wound therapy (NPWT) device in trauma and other complex wounds.

Methods: The present clinical study is a prospective, interventional study conducted at a tertiary care center. NPWT was applied and the Bates-Jensen Score was calculated to assess the improvement in

wound healing outcomes.

Results: Twenty-two patients were assessed. The outcomes demonstrated that NPWT treatment reduced Bates-Jensen score when compared with the baseline score.

Conclusion: This indicates that NPWT therapy facilitates wound healing by increasing granulation tissue formation and lowering wound exudate levels.

Key words:

■Bates-Jensen Score,

■Negative pressure wound therapy

■Trauma Wounds

■Wound Exudate

■Wound Healing

■Wound management

Sushma Sagar is Professor, All India Institute of Medical Science, New Delhi, India;

Parvez Mohi Ud Din Dar is Senior Resident, All India Institute of Medical Sciences New Delhi;

Subodh Kumar is Professor, All India Institute of Medical Sciences New Delhi;

Amit Gupta is Professor, All India Institute of Medical Sciences New Delhi

      This article first appeared in our sister publication Wounds Asia in volume 5 issue 2. Citation: Improved Bates-Jensen score following negative pressure wound therapy on wounds of various aetiologies: an experience from a tertiary care centre. Wounds Asia 5(3): 15–21

Empowering diabetes self-management: A qualitative study on developing and evaluating health literacy tools for virtual consultations with certified diabetes educators

Nazli Parast, Pamela Walsh

This article presents a quality improvement study focused on developing a health literacy assessment tool for certified diabetes educators in Canada to use during virtual consultations with people diagnosed with type 2 diabetes. The study aims to improve healthcare professionals’ understanding of their patients’ health literacy levels in order to provide tailored education and support for diabetes self-management. It explores the prevalence and management of diabetes, the role of health literacy and education in diabetes management, and the significance of the study. The research questions address the effectiveness and practicality of existing health literacy tools in virtual consultations, the potential for improvement or development of a new tool, and the implications for patient-centred care in diabetes education. The article emphasises the importance of assessing health literacy in virtual consultations to ensure effective diabetes management and better outcomes for individuals living with the condition.

Citation: Parast N, Walsh P (2023) Empowering diabetes selfmanagement: A qualitative study on developing and evaluating health literacy tools for virtual consultations with certified diabetes educators. Journal of Diabetes Nursing 27: JDN311

Article points

1. A study was conducted to develop a tool to assess during virtual consultations the health literacy of people with type 2 diabetes.

2. For healthcare professionals to provide effective diabetes education, it is essential that an understanding of an individual’s health literacy is gained.

3. Through a quality improvement approach, participating certified diabetes educators helped to develop a new tool with the potential to help ensure effective self-management and improved outcomes.

Key words

- Certified diabetes educators

- Health literacy tools

- Type 2 diabetes

Authors

Nazli Parast, Advanced Practice

Nurse and Diabetes

Nurse Educator, and Pamela

Walsh, Associate Professor,

Athabasca University, Athabasca,

Alberta, Canada.

DELIVERing reassurance that early eGFR reductions with SGLT2 inhibitors should not prompt drug discontinuation

A pre-specified secondary analysis of the DELIVER randomised controlled trial in 5788 people with heart failure with mildly reduced or preserved ejection fraction, with or without type 2 diabetes, explored the implications of early eGFR changes after initiation of dapagliflozin on later cardiovascular and renal risk. As expected, from baseline to 1 month, eGFR declines of >10% were more common in those actively treated with dapagliflozin than in those treated with placebo, occurring in 40% versus 25%. In placebo recipients, experiencing an initial eGFR reduction of >10% was associated with a higher risk of major adverse cardiovascular events. However, in those treated with dapagliflozin, although an initial eGFR reduction of >10% was common, this was not associated with adverse cardiovascular or renal outcomes compared to those treated with dapagliflozin who experienced smaller initial reductions in eGFR. The authors concluded that these findings reinforce the advice, based on earlier studies in those at high risk of cardiorenal disease, that SGLT2 inhibitors need not usually be discontinued or interrupted in response to an initial eGFR reduction. Other studies and editorials have concluded that routine monitoring of renal function is not required after initiating SGLT2 inhibitors unless volume depletion is considered a risk.

Pam Brown

GP in Swansea

Citation: Brown P (2023) Diabetes

Distilled: DELIVERing reassurance that early eGFR reductions with SGLT2 inhibitors should not prompt drug discontinuation. Diabetes & Primary Care 25: 205–7

Breaking the cycle – Empowering healthcare professionals to overcome stigma in diabetes care

Deborah Christie

Professor of Paediatric and Adolescent Psychology, University College London Hospitals and Dartford and Gravesham NHS Trusts

Citation: Christie D (2023) Q&A: Breaking the cycle – Empowering healthcare professionals to overcome stigma in diabetes care. Diabetes & Primary Care 25: 183–6 Q&A

Article disclosure: This article describes research commissioned by Abbott, and Professor Christie was paid a fee by Abbott to contribute to this article. The views expressed are those of the author and not necessarily those of Abbott. The article was commissioned by the Editorial Board as a topic of interest. The journal has received no funding, and all peer review and editorial decisions have been made independently and according to the journal’s usual procedures.

Citation: Christie D (2023) Q&A: Breaking the cycle – Empowering healthcare professionals to overcome stigma in diabetes care. Diabetes & Primary Care 25: 183–6

Assessment of chronic wound patients’ journey in India: a survey of the perspectives of healthcare professionals and patients

Background: Chronic wounds fail to progress through a normal sequence of repair. This study aimed to evaluate the chronic wound patient journey among healthcare professionals (HCPs) and patients in Indian settings.

Methods: A survey questionnaire was framed, including patient burden, initial diagnosis and treatment preference, referral pathway, challenges, and unmet needs of HCPs and patients.

Results: A total of 100 HCPs and 30 patients participated in the survey. The primary challenges faced by the patients include high treatment costs and accessibility to healthcare centres while HCPs reported high treatment cost and lack of awareness as challenges. Affordable treatment options and lack of awareness were cited as prime unmet needs by both HCPs and patients.

Conclusion: The use of adapted products and early initiation of treatment can aid in faster wound healing and can be cost-effective.

Authors:

Arun Bal, Sanjay Vaidya, Rajiv Parakh, Vivekanand, Pavan Belehalli, Madhu Periasamy, Jessy Thomas, Bharat Kotru, Beulah Priyadharshini D R, Venugopal K and Pratik Bhide

Arun Bal is Consultant Diabetic Foot Surgeon, S L Raheja Hospital, Mumbai, India;

Sanjay Vaidya is Consultant Plastic Surgeon, S L Raheja Hospital, Mumbai, India;

Rajiv Parakh is Consultant– Peripheral Vascular and Endovascular Surgery, Medanta Hospital, Gurugram, India;

Vivekanand is Consultant Vascular Surgeon, BMJ Hospital, Bangalore, India;

Pavan Belehalli is Orthopaedic Surgeon, KIER, Bangalore, India;

Madhu Periasamy is Consultant Plastic Surgeon, Ganga Hospital, Coimbatore, India;

Jessy Thomas is Surgeon – Podiatry, Hiranandani Hospital, Mumbai, India;

Bharat Kotru is Podiatrist and Wound Care Specialist, Max Hospital and Amandeep Hospital, Amritsar, India;

Beulah Priyadharshini D R is Medical Affairs Manager – India, Urgo Medical;

Venugopal K is Medical Affairs & Training Specialist – India, Urgo Medical;

Pratik Bhide is Managing Director, India, Urgo Medical